Minutes from the NHC meeting Helsinki September 15th 2011
Participants: Páll Torfi Önundarson, Jan Astermark, Pål Andrè Holme, Erik Berntorp, Riitta Lassila , Anna-Elina Armstrong, Lone Hvitfeldt Poulsen, Andrea Landorph, Fariba Baghei , Karin Knobe and Pia Petrini
1. Páll was appointed as chairman of the meeting.
2. Páll gave a presentation of the annual report of the Nordic Hemophilia Council (NHC) 2010-2011.
- the current NHC members
- Issues in 2010-2011 (See attached Annual report).
Páll informed about the Websites. No new proposals for the website has arrived
4.FinancesJan presented the audited annual report from the past financial year. (See attached Financial report)
Membership fee: It was discussed to drop the annual fee and instead apply membership through the website annually.
von Willebrand working group: (Andreas (Chairman))
The revised short version is now in press.
The full version is still under revision.
Nordic guidelines for treatment of haemophilia.
Erik (chairman) informed that the Swedish SBU now is finished and wanted to initiate the work on Nordic guidelines for treatment of haemophilia. (Riitta (Finland), Pia , Fariba (Sweden), Lone (Denmark), Pål Andrè (Norway ) and Páll (Iceland). Acquired hemophilia: Jan will revise the old guidelines
Platelet dysfunction (Ritta will chair the group) Work will be initiated next year [/list]
Working group for principle of care and education The group is chaired by Jan and will work in close connection with the group for Nordic guidelines for treatment of haemophilia.
Working group for a common database in the Nordic centres.
The NHC wants to have a common database in the Nordic centres and different solutions were discussed. The aim is to get vital statistics form the Nordic Hemophilia Centers. Margareta (Chair) and Elena (co- Chair) together with Erik and Andrea will lead this work in the future. [/list]
6. Nordic Consensus meetings.
The NHC wish that Nordic Consensus meetings within the area of NHC should be a part of the NHC activities in the future.
Meetings will be held with annual meetings as the situation arises
Pall was re-elected as chairman (2011-2013)
Pål was re-elected as secretary (2011-2013)
Riitta was re-elected as auditor.
8. Next meeting: To be determined.
Pål Andrè Holme